Pyruvate kinase (PK) deficiency resources
and support

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Learn more information about PK deficiency with these resources

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Agios Understanding
PK Deficiency Brochure

This brochure provides an overview of PK deficiency as well as tools to help you work closely with your doctor to proactively manage your condition.

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PK Deficiency Through the Decade

Understand more about PK deficiency and read summaries of key research papers published over the past decade. The list of publications and information you gather can also be used to build more proactive discussions with your doctor.

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Agios PK Deficiency
Doctor Discussion Guide

Keeping track of goals, obstacles, and questions can help make sure you and your healthcare team come up with the right management plan for your PK deficiency. Download this discussion guide to help you get organized, make connections, and advocate for yourself as you prepare to meet with your doctor.

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Fast Facts Brochure

Download the Fast Facts brochure for additional in-depth information about PK deficiency.

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Voice of the Patient Report

Download the Voice of the Patient Report to hear more from people living with PK deficiency and their caregivers.

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ONLINE PK DEFICIENCY SUPPORT

The communities below can offer more support from others with rare diseases.

Stay informed and up to date about the latest in PK deficiency.

ENROLL TO LEARN MORE

If you have questions, please call 1-800-951-3889,
Monday through Friday, 8 AM to 6 PM ET.

Stay informed and up to date about the latest in PK deficiency.

ENROLL TO LEARN MORE

If you have questions, please call 1-800-951-3889,
Monday through Friday, 8 AM to 6 PM ET.