Patient Support Managers are here to assist throughout your journey with pyruvate kinase (PK) deficiency

Our Patient Support Managers communicate with you to deliver customized education and support over time in managing PK deficiency.

myAgios Patient Support Managers, Nefar Moran and Elisabeth Herdic myAgios Patient Support Managers, Nefar Moran and Elisabeth Herdic

Meet a Patient Support Manager

A dedicated Patient Support Manager can offer you:

Tailored support:

Tailored support:

Everyone's experience with PK deficiency is different. Our Patient Support Managers will listen to understand your specific needs and interests. They will work with you over time to deliver customized education and support.

Educational resources

Educational resources:

Whether you're newly diagnosed or you've been living with PK deficiency for a while, your Patient Support Manager will share resources that can help you or your family better understand the disease. This will help you communicate with your healthcare team.

Community connections

Community connections:

Living with a rare disease can mean never having met someone else with the same condition. Your Patient Support Manager can provide opportunities for you to connect with other patients and caregivers to allow you to share your experiences with PK deficiency.

The purpose of this program is NOT to offer medical or treatment-related advice.

For these types of questions, contact your healthcare professional.

Enroll in the patient support program to be contacted by a Patient Support Manager and to receive more information and support on PK deficiency.

Keep me up to date about PK DEFICIENCY

Check back here for more information on how Patient Support Managers can help as our program evolves.

If you have questions, please call 1-800-951-3889,
Monday through Friday, 8 AM to 6 PM ET.

Enroll in the patient support program to be contacted by a Patient Support Manager and to receive more information and support on PK deficiency.

Check back here for more information on how Patient Support Managers can help as our program evolves.

If you have questions, please call
1-800-951-3889,
Monday through Friday, 8 AM to 6 PM ET.